RESOURCES *

Accord Alliance (USA)

Promotes comprehensive and integrated approaches to care that enhance the health and well-being of people and families affected by disorders of sex development (DSD).

Advocates for Informed Choice (AIC) (USA)

Uses innovative legal strategies to advocate for the civil rights of children born with variations of reproductive or sexual anatomy.

Associazione Italiana Sindrome Insensibilità Androgeni (Italy)

For all women who have been diagnosed with Androgen Insensitivity Syndrome and their families. We also reach out to those who have similar conditions, and to parents of newborns with ambiguous genitalia.

AIS - DSD Support Group for Women & Families 

Dedicated to helping women and children with AIS (Androgen Insensitivity Syndrome) and other differences of sex development.

Beautiful You MRKH Foundation

Promotes self-esteem, and empowers girls and women with MRKH to embrace their beauty, just as they are.

Bodies Like Ours

Seeks to end the shame and secrecy that surrounds people born intersexed and/or with atypical genitals through community and peer support.

CARES Foundation

Works to improve the lives of the Congenital Adrenal Hyperplasia community and seeks to advance quality health care through support, advocacy, education and research.

Congenital Adrenal Hyperplasia Education and Support Network

DSD Families

An information and support resource for families with children, teens and young adults who have a DSD.

Global Action for Trans* Equality (GATE)

A group of activists working for trans* and intersex equality worldwide.

GrApSIA (Spain)

Support group for people affected by the syndrome Androgen Insensitivity and related conditions.

Houston Intersex Society (USA)

Supports the of end shame for those that were born intersex, DSD, hermaphrodite, eunuch, zwitter, and etc.

Hypospadias & Epispadias Association (USA)

Founded for the education and support of people born with hypospadias or epispadias, their families, and loved ones.

Hypospadias UK 

Information about hypospadias for parents, boys and men from the UK Hypospadias Trust.

Intersex Support for Parents

Intersexioni (Italy)

Intersexuelle Menschen (Germany)

Intersex Initiative (USA)

An activist and advocacy organization for people born with intersex conditions.

Intersex Society of North America (ISNA) (1993-2007)

Was devoted to systemic change to end shame, secrecy, and unwanted genital surgeries for people born with an anatomy that someone decided is not standard for male or female. ISNA ceased operations in 2007.

Intersex Trust Aotearoa New Zealand

A New Zealand registered charitable trust and provides information/education and training for organisations and professionals who provide services to intersex people and their families.

Intersex UK

Committed to achieving equal human rights on behalf of all intersex people.

Organisation Intersex International Australia / Intersex Australia

An activist and support organisation, by and for intersex people, focusing on human rights and on evidence-based, patient-centred healthcare.

Organisation Intersex International (Belgium)

Organisation Intersex International (Chinese)

Organisation Intersex International (Germany)

Organisation Intersex International (USA)

Support Initiative for People with Atypical Sex Development (SIPD) (Uganda)

A grassroots nonprofit support initiative which through community outreach and engagement, provides reliable and objective information on the plight of persons with atypical sex development (also known as Intersex conditions) and similar anatomical variances.

Transgender and Intersex Africa 

An organisation initiated by black transgender and intersex individuals to focus on black transgender and intersex issues in South Africa.

TrIQ (Germany)

A social center and a political, cultural and research activities of active association that advocates for trans, intersex and queer people living in Berlin and beyond.

XXY Intersex

Zwischengeschlecht (Switzerland)

An international human rights group fighting against intersex genital mutilation and for physical integrity for all children born with 'atypical genitalia'.

* Descriptions posted from language found on the respective organization's website, social media, and/or literature.